What can I expect to find here?
These resources are developed in conjunction with the “Stories Matter”: Use of Narrative in IRB Member Education program workshop at the PRIM&R Advancing Ethical Research Conference. During these workshops, we have been exploring the use of different types of narrative resources to enhance research ethics education for IRB Members and other stakeholders. We have found that use of narrative resources in this setting:
- Induces co-learning and more engaged learning experiences
- Reduces the sense of distance between ethicist/reviewer and research participant
- Leads to more effective identification of potential risks and harms in research
How do I use these resources?
These resources are used in a variety of ways:
- They can be embedded in existing IRB Member or researcher training.
- They can be used as supplements to standardized programs, such as CITI Training.
- They can be shared with IRB members through meeting agendas or email distribution lists.
- Many of these resources are very effectively used as bite-sized educational segments shared at the introduction of IRB Meetings.
How can I contribute?
This resource is curated through a joint partnership between Research & Compliance, Lindenwood University and Gianna McMillan (MA), Bioethics Institute at Loyola Marymount University.
Resources
Journalism
Cinema and TV
| Year | Director(s) | Title/Series |
|---|---|---|
| 1961 | Stanley Kramer | Judgment at Nuremberg |
| 1975 | Charles Dubin | The Tenth Level |
| 1990 | Penny Marshall | Awakenings |
| 1993 | Roger Spottiswoode | And the Band Played On |
| 1996 | Michael Apted | Extreme Measures |
| 1997 | Joseph Sargent | Miss Ever's Boys |
| 1999 | Roland Richter | After the Truth |
| 2001 | Mike Nichols | Wit |
| 2004 | Various | Your Life in Their Hands (2004 Series) |
| 2005 | Fernando Meirelles | The Constant Gardener |
| 2010 | Mark Romanek | Never Let Me Go |
| 2015 | Michael Almereyda | Experimenter |
| 2015 | Kyle Alvarez | The Stanford Prison Experiment |
| 2017 | John Hoffman | First in Human: The Story of Building 10 |
| 2018 | Bernard Friedman | N of 1 |
| 2019 | Buzzfeed | I Survived The Holocaust Twin Experiments |
| 2019 | Tim Wardle | Three Identical Strangers |
| 2019 | Todd Haynes | Dark Waters |
Fiction and Non-Fiction
| Year | Author | Title |
|---|---|---|
| 1886 | Leo Tolstoy | The Death of Ivan Illyich |
| 1966 | Sawako Aryioshi | The Doctor's Wife |
| 1999 | Allen M. Hornblum | Acres of Skin: Human Experiments at Holmesburg Prison |
| 2003 | Being Human, Readings from the President's Council on Bioethics | |
| 2004 | David Gilbert | The Normals |
| 2007 | Allen M. Hornblum | Sentenced to Science: One Black Man's Story of Imprisonment in America |
| 2009 | Ben Bova | The Immortality Factor |
| 2011 | Rebecca Skloot | The Immortal Life of Henrietta Lacks |
| 2011 | Ann Patchett | State of Wonder: A Novel |
| 2014 | Matthew Thomas | We Are Not Ourselves |
| 2014 | Karen M. Masterson | The Malaria Project |
| 2016 | Luke Dittrich | Patient H.M. - A Story of Memory, Madness, and Family Secrets |
| 2016 | Mary E. Williams | A Series of Catastrophes and Miracles: A True Story of Love, Science, and Cancer |
| 2017 | Meredith Wadman | The Vaccine Race - Science, Politics, and the Human Costs of Defeating Disease |
| 2017 | William Rosen | Miracle Cure: The Creation of Antibiotics and the Birth of Modern Medicine |
Oral History and Podcasts
The following is a selection of items from the PRIM&R People & Perspectives Project and the More Than Meets the IRB Podcast
- From the PRIM&R People & Perspectives Project:
- More Than Meets the IRB:
Coming soon...
